Eight in ten patients with inflammatory bowel disease (IBD), a rare condition affecting about 20,000 Argentines, cannot attend events or social gatherings, according to a study by the Institute More Life Crohn or Ulcerative Colitis.
"We gathered many testimonies from patients and relatives about their life experience with Crohn's disease, ulcerative colitis or indeterminate colitis, called as a whole IBD," said Telam Luciana Escati Peñaloza, director of the foundation, working with people suffering from these diseases.
Escati Peñaloza, also managing director of the Argentine federation of unusual diseases (Fadepof), explained that these are chronic inflammatory conditions in the gastrointestinal tract and that "they occur differently in each patient."
It is estimated that in Argentina, over 20,000 people live with IBD, resulting in an increase in evacuation rate or urgency, persistent diarrhea for more than four weeks, abdominal pain, mucus or bleeding in the stool, fever and vomiting, among other symptoms.
"Managing an active social life is often a major problem for patients, and data from our study, which involved the European Association of Crohn's Associations and Ulcerative Colitis, shows: 80% cannot participate in events in periodic outbreaks, 50% cannot maintain an intimate relationship and almost 40% should interrupt their daily activities because of the symptoms, "explained Escati Peñaloza.