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You can live with lupus



With proper treatment, the patient lives as long as anyone who does not have the inflammatory and autoimmune disease affecting all organs

Systemic lupus erythematosus is an inflammatory and autoimmune disease that affects all organs. When diagnosed in a timely manner, it is possible to halt its progress with a good prognosis for patients.

Statistics show that in Yucatan, 0.06 percent of the population presents it, ie. between 2,500 and three thousand people.

Dr. Jacinto Herrera León, specialist in rheumatology and director of the regional general hospital number 1 “Lic. Ignacio García Téllez ”of the IMSS, explains that contrary to what some might believe, there is no increase in new cases of lupus in the company, although the number of people with this disease served by the institution has increased.

As he explains, this is because there is a significant increase in beneficiaries as a result of migration of neighbors from other states.


Indicates it Yucatán It occupies first place in the world in cases of rheumatoid arthritis since 2011 with an incidence of 2.8% of the population, more than double the national and world average, which is 1.3%. However, Lupus – a rheumatic disease – remains at 0.06%.

Dr. Herrera León states that the condition affects people of productive age, that is, between 20 and 40 years, and mainly women in a ratio of 9 to 1 compared to men.

Taking into account that 40% of women are housekeepers, one can understand why the disease has a financial impact on the home.

The professional adds that lupus erythematosus affects the skin, brain, kidney, liver, eyes, lungs, heart, blood vessels and intestines, so a timely diagnosis is important to stop it and avoid injuries that endanger the person's life.

It is an autoimmune disease, which means that the body's own cells attack the body by mistake.

30% of lupus patients have kidney involvement, which overshadows the prognosis of life.

It is known that at the beginning of evil there is a genetic component that remains "asleep" until some factor in the environment "awakens" it.

Many times it is the exposure to ultraviolet sun rays that triggers it. It can also be an infectious or viral disease or the ingestion of certain medications.

One sign of the presence of lupus is the redness of the face "in butterfly wings", that is, in a pattern that does not cover the entire face.

Oral ulcers (redness), involvement of small and medium joints, anemia and red blood cell reduction are also symptoms that can alert the disease.

The diagnosis is clinical and is confirmed, among other things, by blood tests, biopsies – if the doctor considers it – and magnetic resonance imaging.

treatments

Dr. Herrera León points out that current treatments allow patient survival for 10 years in up to 95% of cases, which does not mean that after that time they will be killed because if they continue to medicate and take care of their health they can live as many years as any other person without the suffering.

The most important thing is to stop the development of the disease before it reaches a difficult phase.

The doctor assures that they have all the necessary medicines in the IMSS to treat systemic lupus erythematosus and that the patients receive them, it is only necessary that if they are the right recipients, they go for consultation to get the diagnosis and therapy. . – Iris Ceballos Alvarado

Anyone likes an autoimmune disease

In diseases such as lupus, psoriasis and hypothyroidism, the immune system itself attacks the organism due to an error that leads it to conclude that there are foreign substances and must eliminate them.

It is estimated that 20% of the world's population suffers from some form of autoimmune disease, so even though these conditions do not reach very high numbers individually, they together make up a significant number.

Specialists on the subject explain to the journal that humans have a very aggressive immune system that is required to protect the body from threats from numerous bacteria and viruses. Usually when the system senses something strange in the body, it responds to reject it without affecting its own cells and organs.

This way of acting changes when there is an autoimmune disease as the system stops recognizing what is part of the same organism and responds by attacking it.

Mainly genetic factors as well as environmental and cultural factors (lifestyle, diet, etc.) are exposed to the appearance of immunological failure.

When this occurs, infections, cancer, excessive reactions (allergies) and autoimmune diseases occur.

Hypothyroidism, psoriasis, lupus, rheumatoid arthritis and vitiligo are some of the autoimmune diseases that the population knows best, but the total number of these amounts to hundreds.

According to experts, lupus is rare in Yucatan as well as in Mexico and the world.

One of the reference centers in the treatment of lupus in the country is the National Institute of Medical Sciences and Nutrition "Salvador Zubirán" in Mexico City, where about two thousand cases are treated, a smaller number if it is considered to be concentrated large number of patients in Republic.

perception

The idea that there has been an increase in cases of lupus in the state and country is explained by specialists as just one perception, the result of several doctors, health care institutions, coverage and dissemination of the disease, which also has led to several diagnoses, without this means a real increase in incidence.

They add that any person can be affected by an autoimmune condition, the only way to counteract this and other illnesses is to be aware that 80% of a person's well-being depends on themselves.

In each hands, the opportunity to eat a balanced diet, exercise, rest long enough, avoid excess and take care of emotional health, are five recommendations that must be followed to ensure good health. – Iris Ceballos Alvarado

It was created in 2018 and integrates half a thousand people

About 500 people are part of the Association of Lupus and Rheumatic Diseases in Yucatan that try to guide, inform and connect those who have this condition so they know they are not alone.

The group was formed last November and consists of patients with various rheumatic diseases, such as lupus, found in Yucatán, Campeche and Quintana Roo.

Andrea Pérez Herrera, president of the association, states that 60 to 70 percent of members suffer from lupus and the rest, from other rheumatic diseases.

He explains that one of his main goals is to provide support to people to care for their illness, and that is why they have agreements with medical specialists from different areas that offer them low cost consultations.

Rheumatologists, nephologists, psychologists, pediatricians and therapists are some of the experts that can be accessed through the association, which also has an agreement with two laboratories, as conducting studies of these diseases is burdensome.

Similarly, they receive discounted services from an ophthalmologist because such conditions can affect vision, either because it directly affects the eyes or as a result of taking medications with a strong cortisone load.

The group holds monthly meetings, to which it invites a specialist to give a lecture. When this is not possible, they gather to celebrate the birthdays of the month, live together, answer questions and support each other.

And that's it, Andrea Pérez says, many times family and friends do not understand the physical pain that patients feel, so talking to other people who are going through the same thing makes them feel better understood.

Andrea Pérez points out that medicines for diseases like lupus are expensive and that not all members have social security services.

He emphasizes that hospitals like the regional high specialty of the Yucatan Peninsula do not have lupus medicines in their catalog. This motivated them to send last May, with the support of Deputy Manuel Díaz Suárez, an initiative of the Union Congress to include treatment of this disease in popular insurance.

He adds that two other associations in the country sent similar initiatives.

Andrea shares that she was 18 when she was diagnosed with lupus. The doctors advised him not to get pregnant as it would cause many problems; However, he emphasizes that patients with good management of the disease can lead a normal life, as was the case with her already mother of two children. – Iris Ceballos Alvarado

switch, Contact

To learn more about the Association of Lupus and Rheumatic Diseases in Yucatan, check out their social network and website and call 9994-20-33-27.

drugs

The medications for these diseases are prescribed according to the characteristics of each patient who, when manifesting improvement, uses fewer doses or if he fails to meet the expected effects, he changes it.

donating

It is in these cases that the partners donate them in favor of other members who receive them when the drug appears on their prescription.


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